So today was a terrible day. It was a day where I was told by the State of New Jersey that I am considered a neglective parent. I don’t even know why. He is almost 16 and he is just fine. We have all done a great job raising him and keeping him safe. Just because of an autistic stim I was made to take my son to the emergency room tonight.
I want to know when people are going to realize what autism is and what it does to the person who has it and the family that raises it. Just because I have been rejected by the system so many times and not have gotten services for my son since early intervention was over since the age of 3.
I have been asking for help so many times and every time I called someone I was made to feel like a fool for calling. No one knows what it is like to raise someone with autism unless you are doing it already.
I have always tried to be the advocate type and help others like me. Give them someone to talk to and ask questions to confused and scared moms like me. Not that I ever knew where to turn I would just work through the issues with our son and move onto the next one.
His new thing is liking to have the sensation of being wet so he pours water all over himself. He pours water on his pants and he refuses to take them off. I have a very hard time getting him to understand that is why his skin is hurting him and we put cream on all the time. His school nurse will call and say she had to put cream on him today and I say I can’t understand why he does this when he knows it hurts him.
The school who is supposed to be helping him and helping us understand how to live with him. How to understand him has failed us. I am remembering things all the time now where I gladly signed up to see his speech teacher, to learn how to use his communication device. Well, I saw her once and said I’ll come back next week and the day of the appointment she called and canceled and said you know you don’t have to come every week. Maybe just once every couple months. Now you made me feel like I was a bother even though you were supposed to be helping me learn how to understand my son.
Now you blame me for not trying hard enough to get other services for him just because you say so. Now you say so. I have only been trying since he was 3. Deny Deny Deny. All because someone at the school did not do their job.
I have an update to this blog. I have a few others written about this too. But the one I just did is a video series.
So we figured out since this day that my son likes the weight of the water and not the actual water. We are still being investigated as neglective parents even though we were told the case would be dropped. So I am thinking of getting a lawyer to deal with his school. If you are really interested in the full story.