Children in New Jersey diagnosed with #Autism is 1 in 41.
Our boy is 16 and we have raised him with nothing but love and participation.
His school took away a lot of his services. He gets no Occupational Therapy and only 15 minutes of Individual Speech once a week and 15 minutes of Group Speech a week.
He is nonverbal besides the words that we teach him daily. But still, hasn’t developed a full sense of punctuation. He developed a sensory behavior and it was tough to figure out why he was doing it. But when we did we asked for Occupational Therapy back in school because he had gotten therapy in the squeeze machine and we believe this is why he is doing this behavior at home.
The school called DYFS on me instead and told me to get in-home services for him since they see no behaviors at school. They had us investigated for abuse and neglect with the Department of Children and Families. DYFS. It was found to be Not Established.
We are so disheartened by this situation. Our son has gone to school every day and is always healthy and happy. The behavior therapist told us that what Parker was doing at home was an attention getting behavior and he is begging for attention.
This is a sensory behavior caused by taking away the squeeze machine. It all matched up with his extreme weight gain and the sensory behavior he was now doing at home.
When I begged for them to just let him use it a couple times a month they said he could come down there anytime he wanted. I was also told to get a Doctor script for Occupational Therapy and I did and they denied it and said he can still use the OT/PT room on an as needed basis. He doesn’t talk and doesn’t realize he needs to go there.
I don’t understand what is going on and I am fighting for our family every day. Howard and I have always been 100 percent participating in school. Always at meetings. Always come to events, parties and would drive miles and miles to find something Parker needed to have to participate in classroom events.
We hardly look like a family that neglects our boy. You all can see here on Facebook and on our YouTube channel Parkersmom215 that both my boys have been nothing but loved and cared for. I don’t see how and autistic behavior is caused by us.
I don’t understand why someone that has never come to your home or seen anything you ever do for your child would pick up the phone and do something like that to a family.
Especially a school that is supposed to provide autistic services. I don’t see where he is even getting any services.
He wants to talk so bad and we are teaching him every day just like I always have. I am a kick ass mom and my husband is so supportive and loves his children so much. He works his butt off daily to provide for us. The divorce rate with Autism is very high and always has been and to see a man still raising his family right there should be a sign of nothing but love and participation.
I know I shouldn’t rant on here and usually don’t but I want others to know what has happened to me. I know others out there that have had the same happen to them. We are not the ones you should be looking at.
How about the families that don’t participate in anything at all or don’t show up to meetings that pertain to their children. How about the boy I saw on the news tied up and sitting next to a house in a vacant lot.
The therapists at the meeting that I asked to have with everyone who has anything to do with Parker on January 18th told me that I had to tell in home services that we feared for our lives when my son got upset and we also fear for his. We were told we had to tell them he is so much worse than he is so that we get the services we need in place for him at home. I said they would take him away from us. They said not necessarily and if they took him to crisis for a couple days it would not be so bad. When I told them I was helping my mom when I could because she had breast cancer surgery so what he was doing at home might have gotten a little out of control but now I will have to make sure I can’t help my mom anymore so I will be there all the time with him like I always am. The behavior therapist said I am sorry this is such bad timing for you.
I am still so sad over that meeting. The people you trust to take care of your kid every day at school would allow him to be traumatized at a crisis center when he absolutely does not deserve to be there. They even said he has no behavior log in school anymore because his aggressive behaviors are not existent in school. Then why do you want him to go away and why would you say I need to get in home services. Something I have begged to get for years and years when yes I would say we really needed it. But now our boy has calmed down a lot and knows what is expected of him and tries hard every day to let us know what it is that he really wants.
I spoke to the new social worker there several times since September and asked for help in the situation because we believed it was sensory. I also asked for a couple other things she could help me with and I got this instead. I am getting no help from them.
I really think someone better hurry up and figure out what is causing Autism so we can cure it. Soon there will be no one that doesn’t have #Autism.